OUR NEXT MEETING WILL BE HELD
AT 7:00 P.M. ON TUESDAY, JUNE 13, 2006
Our summer closing Pot Luck and Social Evening with light music!
And a lucky draw offers great prizes! [Tickets available at the sign-in
Bring along your favorite dish and a food item as well! ;-)
Send any suggestions for the evening to:Fred
Norris, Chairman, 905-877-8092 or e-mail:
We look forward to seeing you in Room #2, The Terry Miller Recreation
Center, 1295 Williams Parkway at the southwest corner of Williams Parkway &
Bramalea Road. Parking is free.
MAY 13, 2006 "THE MANAGEMENT
OF POST-PROSTATECTOMY INCONTINENCE"
Around 65 members, wives and guests attended Dr. Jonathan Gidden's
session on a topic that is always of great interest to our members. Dr.
Giddens explained that a temporary period of incontinence almost certainly
effected everyone following a prostatectomy but in most case lasted several
weeks to perhaps months.
However in some cases, Dr Giddens explained, incontinence may be
prolonged or permanent and of varied degree. As part of his talk Dr
Giddens screened a video produced on this subject by the American Medical
Services [AMS] for Us Too!
He described some of the causes of incontinence, its severity levels, some
of its inconveniences and impacts on life style while citing associated
During his talk he expanded on several of the different levels of treatments
options available to manage incontinence. Dr. Giddens stressed how 'Kegel'
exercises not only prevented incontinence often associated with aging
but were vital to reduce the incidence and severity of incontinence
following a prostatectomy. He described the basics of 'Kegelling', the
duration and frequency and recommended that they be done before and after
Dr. Giddens discussed the use of medications, injectable bulking agents and
supportive devices but cautioned that benefits from many of these could not
always be assured or long term. He then focused on surgical procedures using
implants such as the 'Male Sling', a minimally invasive 45 minute
outpatient procedure with a high success rate for mild to moderate cases and
the 'Artificial Urinary Sphincter' (AUS), an hour long outpatient
procedure considered the 'Gold' standard in managing moderate to severe
incontinence. He covered their operating principles, the likely candidates,
the procedures, advantages and possible complications and how these were
managed. He shared statistical data on their success and re-operating rates.
The talk was followed by what turned out to be a very educational Question
and Answer session. Dr. Giddens responded in depth to the many questions and
concerns posed by our members, guiding them and suggesting the options for
their specific condition. A very informative evening indeed for everyone -
one with a hopeful message that with the technology available no one need
live with the fear and embarrassment associated with incontinence.
We thank Dr. Giddens for a very informative, interactive and educational
session. We hope that he will address our group again in the near future!
The Audio recording of this session is in 2 parts:
Part 1: Talk -
[Talk time: 36:39 minutes].
Part 2: Q& A -
[Talk time: 21:57 minutes].
Library call Number: Audiobook 616.99463 Gid Availability: Early June
Slides: We were advised by Dr. Giddens that the slides of this
session are proprietary; therefore we cannot offer them for download.
In his opening remarks, Chairman Fred Norris made announcements pertaining
to the availability of Audio CD's of our talks, the upcoming Golf
Tournament and Relay for Life, the June Pot Luck and the
matter of member 'suggestions'.
The talk ended somewhat earlier than our usual time but most of the group
stayed on to socialize.
Member Jose Palad, who recently completed a very difficult period of
Chemotherapy, shared his story of how he had coped through prayer and music.
He touched the group by playing a short violin piece that had given him hope
and solace through these trying times. The evening thus closed amidst much
applause from the audience.
A MESSAGE FROM THE CHAIR
The busy month of June brings to a close our 12th year
as a chapter. First is our "Pot Luck" supper on June 13th, a
night when we try to relax and put the worries of this disease behind us. We
will rummage up some items and have a draw as well as being convivial with
We have extended an invitation to Michelle Karker, the new manager of
the Canadian Cancer Society office in Brampton along with her hard
working sidekick Sue Scarfone who is responsible for organizing the
local Relay For Life,to join us on this evening.
June 19th is our annual Golf Tournament which we have stressed
many times as being a fun day for all participants. It is a way for us to
increase awareness of the disease while at the same time enjoy chasing the
little white ball through 18 holes. The day ends with a barbecue and prize
giving for all participants.
Finally on June 23rd an Us Too! team will once again take part in the
Relay for Life. Three major highlights of this twelve-hour event are
the very moving Opening Ceremony, the Survivors Lap and the lighting of the
Luminaries in honour of those who have succumbed to this disease and in
support of those who continue to fight.
The CPCN Annual Conference takes place in Calgary at the end of July;
three of our members have signed up to attend.
Of course the Steering Committee will continue to meet throughout the summer
to ensure that next season will start with a bang.
Meanwhile from the Steering Committee to all of you: have a happy, healthy
and safe summer.
Fred Norris, Chairman, 905-877-8092 or
2005-2006 GUEST SPEAKERS &
Monday, June 19, 2006 - The 6th Annual Us Too! Charity Golf
Tournament will be held at the Acton Golf Club.
Friday, June 23, 2006 - The 2006 Relay for Life will
start Friday evening and run overnight to Saturday morning at The
Tuesday, October 10, 2006 - Arlene Dalton will conduct
a session on the health benefits of Yoga. .
Tuesday, November 14, 2006 - Dr. Padraig Warde (Topic to Be
Future Speakers - Your suggestions and recommendations for
future speakers are always welcome!
Mukul Luthra, Speaker Committee, 519-853-4075, e-mail:
RECENTLY DIAGNOSED? CONTACT Us
If you have been recently diagnosed with prostate
cancer and would like to talk to someone who has been there, please call
ahead and we will arrange to meet you at a convenient time and place.
Alternatively, come early to one of our monthly meetings and inform the
front desk of your arrival. One of our counselors will welcome you
and listen to your concerns. Our meetings are held on 2nd TUESDAY of each
month except July & August but we accept calls all through the year. Family
members or friends and supporters are welcome!
There is no obligation to join anything. We have been there and we
think we can help you deal with this very difficult period in your life.
If you would like our support, please call any one of the following to
obtain meeting dates and locations: Sean Butterly,
Counseling Associate at 905-454-4237 or Fred Norris,
Chairman, at 905-877-8092 e-mail:
firstname.lastname@example.org or Ian Smith, Vice
Chairman at 905-454-3880 e-mail:
6th ANNUAL CHARITY GOLF
TOURNAMENT - MONDAY, JUNE 19, 2006
Where: Acton Golf Club
When: Monday, June 19th
Register: 8 a.m.
Tee Time: 9 a.m.
Format: Shotgun Scramble
For More Information Contact the Coordinator or
any member of our Golf Committee:
Morris Rambout, 905-793-8843
Sean Butterly, 905-454-4237
Jack Dainton, 905-793-0205
Fred Norris, 905-877-8092
As always, we are actively searching for prizes. If you have any
suggestions, please contact me or any of the Committee Members.
Peter Barhydt, Golf Coordinator, 905-838-3265, e-mail:
CANADIAN CANCER SOCIETY 'RELAY
FOR LIFE' - FRIDAY, JUNE 23 to SATURDAY, JUNE 24, 2006
The 2006 edition of the Relay for Life will once again
be held at the Brampton Fairgrounds, 12942 Heart Lake Road between
Mayfield Road and Old School Road.
Registration opens at 5 p.m. on Friday evening; Opening
Ceremonies start at 7 p.m. and Closing Ceremonies at 7 a.m.
Even if you are not interested in walking in the
Relay, please join us for the Survivors' Reception at 5 p.m. on Friday,
stay for the Opening Ceremonies and then take the Survivors' Victory Lap
with your fellow survivors. You deserve it!
You can also purchase Luminaries for $5 each to honour those who have
succumbed to Cancer or who continue to fight it.
Finally, you can volunteer to assist with the operation of the Relay
I will have all necessary forms with me at the June Pot Luck. In the
meantime, please go to the Canadian Cancer Society's web site for more
You can still register for the Survivors' Victory Lap at
or pledge the Us Too! Brampton Team at
This year's walkers are: Ken Clarke, Ian Clarke, Frank Connolly, Sandi
Dorsey, Gary Foote, Julia Foote, Megan Foote, Michael Loughnan, Mukul Luthra,
Denis Paris and Ian Smith. Tilly Netherton is once again a
volunteer worker at the event, but as always she will be by to make sure we
If you wish to join us, please don't be shy. Go on line or see me at the
June 13th meeting. Your participation will be most welcome.
Jim Dorsey, Us Too! Brampton Team #83 Captain,
Earlier in May, Dr. Stanley Flax cycled a segment of the Cairo to
Cape Town bike ride, i.e., the Tour d'Afrique.
This he did in support of two charities close to his heart, The Stephen
Lewis Foundation, fighting AIDS in Africa, and financial help for the
new hospital in Brampton to ensure we get a "State of the Art" facility.
Dr. Flax appealed for donations for either one or both of these causes, and
on behalf of the membership of "Us Too! Brampton", your Steering Committee
authorized a donation of $500 from our funds to support his efforts.
You have often heard the phrase "Charity begins at Home".
This simply means that charity begins within ourselves, not with someone
else. Individually, we do make a difference. Charity is not necessarily the
giving of money. Your time, knowledge and effort are often more valuable to
a charitable cause.
However, I prefer not to look upon Dr. Flax's efforts as charities, but
rather as urgent needs.
Over the years, we have managed to maintain our "Us Too!" group largely
through the generosity of our membership and peripheral donors who have
supported our annual fund raising efforts. I refer to the "Golf
Tournament" and the "Theatre Night". Theatre Night last year was
quite a let down, with poor attendance, so.., let's put a better effort into
ticket sales this for year's event at the Lester B. Pearson Theatre
on November 1st, 2006. The show is an Agatha Christie murder
mystery called "And Then There Were None".
I regret to say that almost 20% of the membership did not contribute the
requested $10 annual subscription this past season. Be honest now. Don't you
think this is a very small amount of money to help maintain our efforts to
provide top level information about medical, nutritional, mental and
physical well being for anyone in our area who feels the need?
If you doubt what I say, just check our web site and review the 20 or so
speakers, and their talks, which we have obtained for you over the past few
Among our most pressing concerns is the recent lack of new members. You can
help us, and the general public, by accepting Ian Smith's Awareness
Challenge and talking to men about PCa, your personal experience and
your support group.
Awareness is the "First Line of Defense" against this insidious disease.
The second is your support based on your lifetime of experience.
Remember, "Charity begins at Home".
Sincerely, Gerry Brunjes, Finance, 905-791-3043,
AWARENESS CHALLENGE (WORTH REPEATING, IAN!)
Us Too! Brampton has sponsored PSA Clinics in an attempt to raise public
awareness of the importance of initial PSA testing in middle-aged men. The
last clinic at Shoppers World in September 2005 produced similar useful
though limited results as did the first event held at Bramalea City Centre
two years ago. Unfortunately we are limited in how often we can hold clinics
by the availability of space at the malls.
There is another option. It is well known in the publicity business that
"Word of Mouth" is one of the most effective means of advertising both
in a positive and in a negative sense. Naturally I shall focus only on the
positive! Since we are "survivors" we know and understand the nature of our
individual treatments. And we all come into daily contact with other people
that give each of us the opportunity for casual conversation.
Now for the challenge. I am suggesting that each member of the group take
it upon himself to become much more proactive in raising awareness of
prostate cancer. This would take the form of initiating conversations
when the timing is "right," with anyone with whom you come into contact as
you go about your daily business. Of course you must use your own judgment
to decide when there is an appropriate opportunity for a casual conversation
starting with an enquiry such as, "May I ask a man-to-man type question?"
leading to, "Have you had a PSA test?"
From my own experience, such enquiries have more often than not produced a
positive response leading to a conversation about the importance of an
initial PSA test. I have several recent examples: a 57-year old man who
seemed to know very little about the prostate gland and its associated
problems and a black worker approaching his 40th birthday. On both occasions
my "targets" welcomed the conversation. There have been refusals at other
times but that is to be expected.
To emphasize my earlier statement about word-of-mouth advertising, we could
do much more to increase awareness by initiating such conversations than by
relying on PSA clinics. We all have daily contact with many other persons.
Use those opportunities to "Spread the Word".
Will YOU accept the challenge?
Ian Smith, Awareness Coordinator, 905-454-3880, e-mail: